To map the state of the existing literature evaluating the use of social media in patient and caregiver populations.
Medline, CENTRAL, ERIC, PubMed, CINAHL Plus Full Text, Academic Search Complete, Alt Health Watch, Health Source, Communication and Mass Media Complete, Web of Knowledge and ProQuest (2000-2012).
Studies reporting primary
Information and communication technologies (ICTs) provide new opportunities to complement traditional care while enhancing patient autonomy. With the objective to supplement patient care, a group of health professionals at the Hospital Clínic de Barcelona created Forumclínic, an online networking website in Spanish and Catalan. In 2008, seven web- and DVD-based
This paper compares two social media sites that aim to support patients to enhance self-management. The first site, PatientsLikeMe is a well established global site designed to allow peer-to-peer communication between people with similar conditions. The second, HealthShare, is a recently developed site for Australians described as "Australias Social Health
Emerging evidence suggests the relationship between health literacy and health outcomes could be explained by cognitive abilities.
To investigate to what degree cognitive skills explain associations between health literacy, performance on common health tasks, and functional health status.
Two face-to-face, structured interviews spaced a week apart with three health literacy assessments and
Continued refinement of resources for patient information, education and support is needed. Considering the rapid development of new communication practices, the perspectives of young people themselves warrant more attention using a wide research focus. The purpose of this study was to understand information-seeking behaviours, Internet use and social networking online
Information that is persistently collected, unrelated to direct clinical care may be a Pandora's Box for health improvement and monitoring. The use and linkage of disparate data sources, particularly those relating to geo-location and social media present enormous opportunities and challenges for healthcare. To date these sources have been difficult
Parkinson's disease (PD) is an incurable neurological disease with approximately 0.3% prevalence. The hallmark symptom is gradual movement deterioration. Current scientific consensus about disease progression holds that symptoms will worsen smoothly over time unless treated. Accurate information about symptom dynamics is of critical importance to patients, caregivers, and the scientific
Sixty percent of Internet users report using the Internet to look for health information. Social media sites are emerging as a potential source for online health information. However, little is known about how people use social media for such purposes.
The purpose of this study was two-fold: (1) to establish the
Social networking sites (SNS) are now part of everyday life, and SNSs such as Facebook, YouTube, and Twitter are among the most accessed Web sites on the Internet. Although SNSs are primarily used for staying in touch with friends and family, they are increasingly being used for health-related purposes for
Recent publications on YouTube have advocated its potential for patient education. However, a reliable description of what could be considered quality information for patient education on YouTube is missing.
To identify topics associated with the concept of quality information for patient education on YouTube in the scientific literature.
A literature review was